Dear Rob,
Our little girl has Dandy Walker syndrome, with verbal apraxia and a bunch of sensory and motor problems. Dandy Walker syndrome is a brain malformation. Hers was discovered via MRI when she was almost 5 years old. This was after years of therapies, research and tentative diagnoses...
I found your blog yesterday, went to B and N and bought your book- my husband and I read parts of it there in the store, passing it back and forth without comment, just tears and chills.
I am not a stalker or a freak. I just want you to know that I will be featuring your book in my book club within the next few months, and that finding you and your breathtakingly beautiful Schuyler has made my world seem a little smaller. Thank you for your honesty and courage.
Our little girl has Dandy Walker syndrome, with verbal apraxia and a bunch of sensory and motor problems. Dandy Walker syndrome is a brain malformation. Hers was discovered via MRI when she was almost 5 years old. This was after years of therapies, research and tentative diagnoses...
I found your blog yesterday, went to B and N and bought your book- my husband and I read parts of it there in the store, passing it back and forth without comment, just tears and chills.
I am not a stalker or a freak. I just want you to know that I will be featuring your book in my book club within the next few months, and that finding you and your breathtakingly beautiful Schuyler has made my world seem a little smaller. Thank you for your honesty and courage.
2 comments:
I read the Good Housekeeping article about Schuyler about a month ago, and at that time checked out Rob's blog. Now I need to get the book. He has an incredible ability to tell their story...and so to tell ours.
I can hardly wait to read it! Must get a copy and shuffle through The Sun Also Rises first.
Liz
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